Acceptance
Hi guys,
I wish I had seen this Reddit 5 years earlier!
Unfortunately, turns out it's too late for me.
I got my NCS, EMG, and MRI result and even though there are no visible lesions on the MRI, EMG suggests preganglionic lesions. This is consistent with other dysautonomia symptoms I've had for years thinking they are stress related.
Over the past few weeks, I've been obsessively reading recovery stories here and the mechanics of B12 recovery. Given that my issues seem to be in the CNS and are chronic I'm slowly coming to accept that I won't be a success story. But for all your positive energy, I am grateful.
I am currently finding it hard to sleep. How did I let this happen to myself? The most annoying of all the situations I had to fix it was when I've sent to the doctor with extreme fatigue and weakness. He tested for everything but B12 (which I had asked him to) and told me that it couldn't be that as I have normal RBC results. I should have just gone to get sublinguals immediately but was too stupid.
Unfortunately the past doesn't change and the future looks bleak. I'm talking to a mental health professional now to help me through this journey towards self acceptance.
If anyone sees this and suspects a B12 deficiency, please be firm with your doctors and if they don't test you take matters in your own hands.