Newly Diagnosed

My beautiful 8 month old was diagnosed with IS yesterday at the UCSF children’s hospital and I feel like my heart has been ripped out of my body. She’s going to be starting vigabatrin and we’ll do a follow up EEG in two weeks.

The life expectancy rates on google seem pretty devastating and I don’t know what to do with this information. All of the studies seem somewhat old so is there any chance that the life expectancy has improved with the newer medications?

How is anyone supposed to go to work every day and pretend like everything is okay? All I’ve been able to do today is sit in bed with her and cry.