Feel like my insides are corroding
Hoping someone here can provide me some guidance on what I need to do to confirm I'm not dying. In so much pain constantly for a month and the ER doesn't want to do more imaging because I came in November. After endoscopy showed nothing GI doc said I probably have functional dyspepsia.
Me: 38/F, 125lbs, 5'2", Half Hispanic and half Ashkenazi Jew
I'm terrified I have pancreatic cancer. For the last month I've had this gnawing corrosive pain below my shoulder blade. Hurts worse laying down or on side. Awful in the morning after an evening of laying down. It is non stop. Occasional tenderness pain in upper left abdomen and left ribs. Pretty sure it is not muscular skeletal and it is GI related. I have full range of motion. Stool is orange, floating, skinny, fuzzy looking.
I historically have had decades of gastrointestinal distress. Started with constipation, moved on to nighttime reflux and morning nausea, which I still have. PPIs (on max. dose of pantoprazole) & wedge pillow have done nothing.
Fast forward to May 2023. I had about 4 drinks in the course of several hours one evening. I woke up the next morning vomiting with diarrhea, nausea, abdominal pain. I also felt super hungover like I drank a whole bunch the night before which I didn't. My friend and I had the same food so it wasn't food poisoning. In fact she spent the night and was extremely concerned given that we had drank the same drinks and ate the same food. I went to urgent care and they said they suspected I had gastritis, however my endoscopy in January didn't find anything. Pathology report said "antral mucosa with mild reactive changes", but my GI said the biopsy results were normal.
In November of last year I got a CT scan which was normal. I also purchased a full body MRI. (I know docs hate these). Came back normal. I did test positive for SIBO, but the antibiotics rifaxamin haven't done anything for me. I had another weird vomiting/diarrhea episode after xmas. I drank a big glass of red wine with my husband. About an hour later I started throwing up and having diarrhea. I took some spare ondasetron that I had to put the kibosh on the nausea. I feel stable immediately afterwards.
I had an endoscopy in January where I was hoping they'd see proof of gastritis or any evidence of why I've had all these issues. Doc found NOTHING. So I don't know why I have reflux or weird poop.
At the beginning of this month I randomly start having this gnawing back pain under my left shoulder blade that has increased in intensity. Much worse than what I had before. This is also a persistent constant pain that I have. It's almost been a month. Poop is now straight up orange. My primary prescribed me a muscle relaxant and meloxicam and it's done nothing. I went to the ER where they tested my lipase and it's normal. They refuse to do more imaging and prescribe me another anti-inflammatory.
Can dyspepsia cause constant pain like this? I'm already practicing mindfulness and the pain is still there. So scared!
What other tests or exams should I ask from my doctor? I feel like he's not taking me seriously.