What the heck is going on?

In May, I had a fecal elastase test that was below 50. It was performed on diarrhea as I hadn’t seen a solid stool in memory.

I started on Creon 36k. The doctor I was seeing didn’t know jack about EPI, so I took it upon myself to get better. I had gone from 185 lbs down to 150 in a matter of months.

I started taking Zofran. Using ginger candy and gum for nausea. Increased Creon to about 10-12 per day. Got the timing of the Creon down. Gave up on solid food for a few days and pounded Boost. 6 bottles or so per day. Got simethicone for the gas and bloating.

Started feeling better. Had solid stool about 10 days later and have had no diarrhea since. I’m still struggling with appetite, and I think I developed an eating disorder of food avoidance due to constant nausea.

I just had a repeat fecal elastace on solid stool. It went from below 50 to 637.

I was suspicious of the diagnosis for a while. If the first test was a false positive, then what was going on? How did I recover so fast? I weighed almost 167 yesterday. From 150 a few weeks ago.