no doctor thinks i have pots
I don't think I have pots either but I've done so much research and can't find anything close to what I have. My symptoms started a year ago, and since then I have had to quit competitive ice skating school and work. I have done every blood test you could do from all sorts of doctors and they all came back normal. My EKG and heart ultrasound came back perfectly fine. I do have pulsatile tinnitus and horrible migraines that can scale from a 3-9 and I can't move without my neck hurting or stand without the pain shooting down my spine. I also pass out and have presyncope a lot it has probably happened more than 100 times. It gets worse when I do a lot of up-and-down movements or lay down and stand up but not often when I sit and stand up. I also get dizzy beforehand my vision and hearing fade and I can't form proper sentences. It also gets worse when I exercise I can't even walk for too long without getting a headache or fainting. Yesterday I had a 1 am flight and when it gets late I can't function so the floor started shaking to my heartbeat. My neurologist refuses to see me because they think it's a cardiology issue and my cardiologist says nothing is wrong with my heart. No one takes me seriously I'm only 18 and I can't function at all!