People keep downplaying my illnesses

I think I’m (F41) somehow portraying my health better than it is… I guess I look and seem pretty normal/healthy, and pictures from outings look normal too, but obviously doesn’t tell the real story.

But come on! I have multiple scleroses, chronic migraines, ADHD and bad bones, I am retired due to having no ability to work, I use mobility aids and walk real bad, and I can’t drive anymore due to weak legs. How would friends and family “forget” that I’m chronically ill and disabled?! Why do they keep expecting so much from me?

I’m going crazy that I have to keep explaining to people that I’m too tired/sick to do stuff - or being low key guilt tripped.

Why do friends and family keep saying stuff and expecting stuff that shows how little concern they have for me and how little they understand about my health? E.g. some of them keep hinting that they are sad I don’t visit them much, even though it’s a way too long trip for me. They could visit me in my hometown, but they expect that it’s 50/50. Or they are planning all kinds of stuff that I clearly don’t have the stamina for. Pout when I leave early. It is hurtful but I also feel gaslighted.

It really puzzles me!