Seizures and random neurological symptoms

34F, no medication, generally healthy, non smoker, no drug use

Please help!

Around 2.5/3 months ago I started to have some odd symptoms happening to me out of know where and that i had never experienced before. I started to get sporadic uncontrollable shaking/jerking that would last 30 seconds to a minute or two. I would also get tingly feelings on the right side of my body. Also, a few times, when I would have conversations with people I would be unable to speak and start to collapse. I was aware/awake for this, however I wouldn’t be able to control my legs and would have to sit down and ride it out for a minute or two until I would completely be able to start speaking normal again like nothing ever happened. After about 4 days of this happening, I scheduled an appt with my family doctor… I have been anemic and thought it may have something to do with it. She said these symptoms didn’t, she did a quick neurological assessment on me where everything looked fine. She said it was weird and that we would keep an eye on thjs for a week or two and to come back and see her if it persisted. After that appt it got worse 3 days later as the full body collapses happened twice in one morning so I went to ER. Doctor did full blood tests and extended and everything came back normal. Did neurological assessment , everything normal. Asked about stress , I told him I’m a stay at home mom with two kids and in the middle of a house renovation but nothing crazy and he agreed this probably isn’t stress caused. ER doctor Talked to the neurologist who said these were seizures and to also do a CT scan just incase. ER doctor told me CT scan was precautionary and they probably wouldn’t find anything. After 9 hours at ER, they found a 15mm by 14mm pineal gland cyst that was slightly to the right of my brain. Doctor told me he spoke with neurosurgeon and that it looked benign… I asked if this had anything to do with my seizures and symtoms and he said no. These findings just happen and not to worry and I should hear from the neurologist and neurosurgeon within a few weeks and that I was also going to be scheduled for MRI and also an EEG. I ended up doing the EEG within the following week. I received the results on my health app, they came back that I had ‘no seizure activity’. I was expecting to hear from the neurologist to go over these results and called the office after a week but was told it must not be urgent and that my family doctor can go over results. It had been about 4 weeks at this point,since I started having symptoms , and 2.5 weeks since I had visit the ER. The symptoms were still happening everyday during all this as I’m patiently waiting to hear from someone, anyone!!! I should mention I’m in Canada so things definitely take slower. I also never mentioned that I am extremely , extremely sleepy. I sleep for at least 8-10 hours nightly, wake by 7am get my kids ready for school and home with my littlest and feeling tired late morning again. I have been taking a nap daily around 1pm when my son naps, I try to do 20-40 minutes so I don’t feel too groggy when I awake but sometimes I’m so tired I just keep sleeping until he wakes. I have tried to skip this nap but by 3/4pm I’m so so tired I cannot function. Again I will feel tired after dinner or around 6:30pm and fall asleep on the couch sometimes for 30 minute Power Nap while my husband helps with the kids or if not I will fall asleep putting my kids to bed. It has now been almost 3 months since this has started happening, I am still having symptoms, this is NOT my normal, I feel so so so tired, I have bad brain fog, I am still having seizures, they don’t happen everyday and some of them are worse than others, where I have a headache after and bad eye pain, all on the right side of my face. I have scheduled visits with my family doctor who is concerned but can’t really help, she says I need to see the neurologist. She called and spoke to the neurologist personally who said he will try to expedite the file but will still be a month-2 month wait. He also told my doctor that it does NOT have to do with my 1.5 cm pineal gland cyst and that I should try to relax as much as I could. I am disappointed as he hasn’t even seen me yet or any of the videos of my symptoms and seizures and he probably thinks it’s anxiety due to my eeg coming back normal. I have also visit the ER again but nothing they could do. I still haven’t heard back about an MRI either. Is there anyone who has any insight what this could be? Friends and family are shocked and when I try to have conversation, I’m not myself, I will be talking notmal then all of a sudden my speech will become slow and I can’t really communicate what I need to say or loose my train of thought for 30 seconds until I come out of it again. I have a hard time recalling names or places and I have my eyes half closed when speaking. When I get sleepy before naps, I will sometimes completely shut my eyes and fall asleep sitting up.

I’m sorry this is long, I think I tried to explain the most I could. Any doctors or neurologist that have any insight? Please! I really don’t feel well and am worried about my health but unfortunately with the Canadian system there is nothing I can do :(